Mental health update, 7/30/18

I’ve had technical issues and other distractions, but I wanted to give another update on my sister.

She came home after about a week.  As predicted, the insurance company decided to send her home early, against the doctor’s recommendation and the social worker’s protestations. There was not even enough time to bring medication changes to the full dosage. Fortunately, she was well enough this time to stay stable in the meantime. She continues to do well. I just had a nice talk with her.  We’re both trying to lose weight and we trade successes and challenges on that front, among other things.

We can also talk about mental health issues, since I have bipolar depression and anxiety myself. I have pretty good insight into what she goes through.  I like to think I offer some help in coping from what I’ve learned.  And, I’d like to share more about that in coming posts.

I’m relieved she’s doing well, but I still worry about the coming years. There’s the financial issue, and the social. It’s hard to meet and keep friends when you have a serious mental illness. It’s even harder to meet a significant other.

I have to admit that she drives me nuts sometimes when she chatters incessantly. She also tends to turn the conversation back to herself a lot. I hope that I can help her to see that, and maybe learn to listen more. It’s not totally her fault. Her mind races and it’s hard to keep it all in.

It’s a hard knock life.

 

Mental health update

My sister was transported in the wee hours of the morning to a facility an hour and a half away from her home. At least she didn’t have to wait days for it.

I’ll have to drive my elderly parents there to visit on Saturday during the one hour all day that the facility allows visitors.  She’ll probably be there about a week before an insurance company makes the medical decision that she should go home. She will most likely not be ready.

I hope that I make it as a writer so I can help take care of her in the coming years as funding for Medicare and Medicaid is cut down more and more.  It’s scary to think about. It’s enough to think about how my brother and I are going to have time and energy, or be available to help her when our parents are gone.  Hopefully, the services she will need to rely on will still be there. We simply can’t do it all while working full time (with overtime).

I hate to be so negative, but a guy’s gotta vent sometimes. There are good things that come along and make it bearable, and she does have a caseworker who has been helping her to be more independent in the last couple years that she’s had her own place.

I know that I must have faith in God to provide, and I do, but I also believe that God works through His people. We must fight to make things better for all, while we do what we can for our own loved ones.

 

Behavioral health: a misnomer

This post was sparked by news I just received from my mom concerning my sister.  She has a psychiatric diagnosis. The specifics will remain undisclosed for her privacy, but let me first address the general term.  For some years, the psychiatric field has taken to calling things like depression, anxiety, bipolar disorder, etc. by the phrase “behavioral health”, rather than the older, and more accurate, mental health.

It’s a misnomer because it implies that the patient’s behavior is somehow causing the problem. It’s mental illness, not behavioral illness.

My sister was already kind of  “on the edge” lately, emotionally and mentally with her ongoing illness. She’s had many hospitalizations over the years when the symptoms of her illness or the medication management thereof, become too much to deal with.

Then someone from her church, whom she thought was turning out to be a new friend, invited her to a Christian coffee house last Friday. That was not the problem. They both enjoyed it. It was a couple days later that this person said something to my sister about the devil putting a bug in her, or something to that effect, referring to her mental illness. I’m getting a third party relay of information here, but I’ve heard it before.

I myself have bipolar depression.  It was more than twenty years ago, that I tried Biblical counseling. During the months that I was going there, I began to realize I was missing something. It was the fact that I, like my sister, had a mental health issue. When I shared this with my counselor, he told me mental illness is a misnomer. I never returned. I felt betrayed that I had spent time and money there, and shared intimate things, only to be met with a brick wall of ignorance and rejection.

I sought medical help and through medication and God-given inner strength, I have fared much better than my sister, thankfully. As someone I met through NAMI (National Alliance for the Mentally Ill) once said, “But for the grace of God, there go I.”

So, this night, my sister waits alone in the ER for a bed among the mental health departments of any area hospital.  Somehow, none are available in the expansive, profitable “non-profit” hospital networks of our area, save for one an hour and a half away, which somehow qualifies as part of this network area, as far as the profit-gorged insurance companies are concerned.  She’s alone after my exhausted 86 year old dad and 77 year old mom went home for the night, having spent most of the day with her, waiting.

Visitation will not be practical, if she ever gets to that bed. The social worker said it sometimes takes days to arrange a transport from one facility to another of that distance. What a system.

I’ll keep you posted.

P.S. A moment of tough love from a sibling. While the church member should not have said what she did, I wish my sister would learn to assert herself. Hell, tell her off, and be done with her, rather than build it up to this dramatic event. I understand that she has an illness, but that’s what therapy is for. Sounds harsh, I know, but what are sibling for, right?

Irritable days

For those who don’t know, I have bipolar disorder. Well, technically, it’s bipolar depression, which is basically the same thing but with tendencies more for the low side and not the extreme manic highs.

I’ve done well for many years, and thankfully, I still am doing well. I did, however, recently request a change from my doctor regarding one of my medications. I’ve been trying to get in shape and not getting anywhere. I’ve had increased appetite and sometimes pig out almost compulsively. I didn’t make the association with the med until recently.

My doc didn’t want to stop the med altogether right away, so he just reduced the dose. It’s been a couple weeks and I’m feeling very irritable. I also finished up my nicotine gum treatment last week.  It could be either one. I haven’t smoked cigarettes for a year and a half, but was smoking little cigars on weekends and occasionally in between, until the last 6 weeks.  I haven’t smoked at all in that time, but chewed a few pieces of the gum a day.

So, it’s hard to say what’s causing the irritability. I’m just sharing this as part of my experiences with bipolar. It’s something people probably aren’t real aware of, the irritability, that is.  Everyone knows about the mood swings, but there are a lot of secondary symptoms, too.

I also find myself losing interest in things over the years, like film making and origami. But I still like writing and photography, so it’s not all bad. Maybe that’s not a depression thing, but just a normal getting older thing.  I may be over-analyzing. I do that.

Then there’s the anxiety, but I’ll save that for another day, and make this post a short one for a change.